Monday, June 30, 2008
Her prognosis is very good, 80% cure rate (and that’s 80% in her situation are still cured, no relapse, after 10 years). They have a specific protocol for children under 4 with Down Syndrome with this type of Leukemia (AML). I don’t know if I’d necessarily call it ironic, but the good thing is that kids with Down Syndrome do much better against this type of leukemia (the aforementioned 80%) than quote unquote typical kids (more in the neighborhood of 50%).
As ever, my little love, my sweet girl, is an amazingly positive force, even stuck in a hospital room. Smiles for all, blowing kisses to the nurses, the doctors, even often mere moments after they make her cry her lungs out (via eyedrops, ill-flavored medicine, diaper change, etc.) She’s an absolute trooper. She’s moving that leg around more and more, getting more & more chipper, despite the occasional nausea or other discomfort.
Despite her predicament, she’s seen no reason to stop her neverending love of life and appreciation and awe of those around her. The zest she carries for every moment is impossible to resist. We keep her spirits up and she keeps ours up, and you can be damned sure we’re going to fight this thing & beat it.
My mother flew in to help us out with things, most notably keeping an eye on our one year old for the mornings & early afternoons so I could get back to work and we could still have someone always at the hospital. Her moral support and presence during this has been invaluable and we're incredibly grateful both to her for coming and to the circumstances in this life that allowed for it.
The treatment is schedule to last 6-7 months, consisting of 6 rounds of chemotherapy with 3-4 week rest periods following. It’s a whole new ballgame we’re living in now, but we’re figuring it out, one day at a time.
If you’re the praying sort (or even if you’re not), please drop a request to your deity of choice for our little girl to make a full recovery.